Own your healthcare data

If you are healthy, you don’t see this problem as such. If you have some kind of allergies for specific medication, you will have this problem - every time - you visit a doctor or hospital or other healtcare related places. Every. Single. Time. you have to spell it out for them you have an allergie. Apparently they don’t have access to your private healthcare data which includes your allergies, previous history on what you’ve had before, who you’ve visited etc. etc. Maybe because of lack of interest or just too expensive too have a system in place which records and retrieves your data from all those places.

Here’s where Nillion comes in. Own Your Healthcare Data. I foresee a solution in which there are 2 sides. A mobile app and a workstation app.

Possibilities:

  1. Secure login/registration with SSN or something like that;
  2. Some kind of user-management system with different levels of access;
  3. Healthcare data with history (including photos, scans, etc.);
  4. Maybe even lifestyle information, so you get some kind of profile;
  5. Easy-to-use apps (mobile and workstation);
  6. Privacy encrypted

Requirements/nice-to-haves:

  1. Integration/modules with current EMR systems, most likely worldwide;
  2. Easy to use for the consumer AND the specialists;

We need to get rid of all the errors being made in healthcare organisations, because the information is there. Nobody looks at it because there is no general ‘mapping’ for different systems. Many lives can be saved (would be my guess) by having such thing. Even if you’re from USA and are on holiday in Europe for example, just add a specialist in the app with the correct access rights and BAM! All your information is ready to see. Revoke access when you’re back home.

If such a system running on Nillion would exist, I would have no problem visiting doctors/hospitals/ER’s/clinics/laboratories/etc… I mean, just to check if they would have my information of course. Let’s go change! Let’s go Nillion!

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The biggest hurdle I see is that you would have to work very closely with governments for this. As health data usually is by law the best protected data we have.

This idea is very interesting and there have already been proven apps in which this kind of technology has been tested.

Within the UK during COVID everyone had a COVID app that the NHS utilised, we used it to travel to prove vaccination, and we used it within hospitals when ill or visiting family members. It stored all our data around COVID-19.

The issue with this is that the government also had access to this data. How would you suggest an application like this be built out that still protects user data and the privacy of the individual? This could potentially be an application that is highly regulated and if it ends up in the wrong hands could have horrific outcomes.

The idea is solid but exploring how we may navigate around government regulation or even private selling of data through data brokers is something that needs to be deeply explored.

I think the holy grail in this context is genomic data and maybe this is even easier to implement than generic health care data because it’s a single type of data and access can be restricted much more. Not every doctor you visit needs to know your entire genome, nor does the government. As I have mentioned to the team before, there is a great project out there called Genomes DAO, genomes.io, who are building a technology stack for this application with crypto incentives. Their current storage technology is based on AMD’s hardware encryption SEV-ES. I could imagine that augmenting their stack with Nillion’s technology might be relatively easy and yet make for an impressive demonstration with great real-world impact.

Multiple projects are working on digital ID’s including Snickerdoodle, whom I introduced to Nillion’s partnership team. They create the functionality within the ID for the user to decide what data is shared and what they get in return for sharing that data.

Not sure if governments will like citizens having that much control of their info, but that is another topic.

Hey this is a brilliant concept and long overdue. I’m working on a project https://headhealth.io/ to implement something similar in migraine and headache care. It’s a complex issue and data problem in many ways. The user would import all existing medical records and data from other apps, fitness trackers, etc., into their profile and benefit from the analysis and migraine map (created through knowledge graph). Providers, payors, pharma, etc. would have limited access to the data per the users’ preference.

Of course, the data would be on our servers, but as Web 3 progresses, we can follow along and make it decentralized. Right now we have other mountains to move but will get there.

We are excited to explore opportunities with Nillion and I’d value any feedback/thoughts you have.

With confidential computing you shouldn’t have problems to make data secure and decentralized.